The distraught mother, who wishes to remain anonymous, has opened up about her long 14-year struggle for Personal Independence Payments (PIP), which she claims her disabled daughter desperately needs. She has slammed the DWP for leaving her and her adult daughter “at the end of their rope”.
PIP payments are paid by the Department for Works and Pensions (DWP) to people who have a disability or long-term medical condition that affects their daily lives.
Payments are made for how much a person’s condition affects them rather than the condition itself, but a Newcastle mother says the system needs to change.
Ms L’s daughter has Ehlers-Danlos Syndrome, a genetic condition that causes progressive deterioration and degeneration of connective tissues in joints, spine, eyes, gums, teeth, internal organs and the central nervous system, reports Chronicle Live.
Her daughter also suffers from depression and although she has been receiving the highest rate of Employment and Support Allowance (ESA) since 2015, claiming other benefits is not as easy.
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She continued, “It is not ‘natural justice’ to treat people with mental health and mobility issues in this way. We are at the end of our strength.
“My daughter will not be better. She will end up in a wheelchair.”
In response, the DWP said: “Following a comprehensive review of the evidence in July, the PIP award was upgraded to standard mobility and standard life, but Ms L. and her daughter have further avenues of appeal.
“For most PIP applications, we make the right decisions, and all assessments are conducted by healthcare professionals who are trained to consider the implications of an individual’s health condition or disability.
“Our priority is to ensure that the millions of people we serve every year receive the benefits to which they are entitled and ensure they receive a supportive and compassionate service.”
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Allison said, “The cancer has left me disabled, in debt and on benefits.
“I’ve faced issue after issue in the nightmare achievement system, leaving me feeling broken both physically and mentally.
“Due to my diagnosis of cervical cancer and side effects like pelvic pain, I probably should be given a higher PIP rating, but I don’t have the energy to tackle the process or fear that they will be deprived of benefit altogether.”
“Recently I was invited to an assessment center miles from where I live, which I was unable to travel to due to Covid concerns, for a reassessment of performance at an assessment center and the DWP said it would take two years for an in-person assessment could last .
“The money problems have been one of the worst consequences of my cancer and sometimes I feel guilty about being alive.”